Molly decided to explore the clinic room this time. She found out how the water works! |
On March 1st we had another clinic appointment. Everything was just like the first visit of this phase, except they are raising the dose of methotrexate each visit. Molly doesn't really get any side effects from the medicine except for an incontinence issue we have for a couple days after each clinic visit. I asked the nurse about it and she said she can't think of any patient having that problem, so it may just be something that has to do with Molly reacting emotionally to the visits.
March 11th was the next clinic visit. Same drill, same medicine, increased dose on methotrexate. One of the side effects of methotrexate is decreased appetite, but Molly has been eating pretty well so far. It's only about one meal a day that she doesn't want to really eat.
Our next appointment is on March 21st. Molly has vincristine and methotrexate into her port again, and they are also going to do methotrexate into her spine with a lumbar puncture in the RTU. We've been spoiled the last few visits because they were so short, but this next visit will be around 4 hours long.
Molly's hair was growing back, but now it's thinning out again because of the vincristine. We have two more clinic visits with vincristine doses this phase, and then looking forward 9 doses periodically between the middle of April to the middle of July. After that she's pretty much done with that drug and her hair can start to grow back.
P.S.
What a brave little girl. That's kind of funny that she doesn't like the Oncologist!
ReplyDeleteWould be much easier to email you, but I am already here. I was wondering what your family eats now. I know you tried to change everyone's eating habits. My family's aren't super horrible, but I am always looking for different approaches to eating better. Do you feel like there has been a big change to go along with the diet? As always, we are thinking of you and hoping for the best for Molly!
ReplyDeleteWe pretty much switched to eating more fish, beans, organic versions of several condiments, organic produce, (if there's an organic version of anything, we buy that instead of the conventional product) and we read the ingredient labels on everything we buy; if we can't recognize immediately an ingredient, that means it shouldn't be eaten. We cut out corn syrups and other fake sweeteners, and added in agave nectar, stevia, and we sometimes have sugar, but it's just for special occasions. I'm pretty much ok with baked goods, as long as they are homemade, that way I know there aren't preservatives and dyes added intentionally.
DeleteI guess that's basically it. Thank you so much for asking!