On Nov 16th, I was at my mom's house and she brought up Molly's paleness, and her recent drop in energy (she was absolutely refusing to walk by this point). I looked at her compared to everyone else in the house and I realized that Molly really WAS pale. Her lips were a faint pink and the insides of her eyelids where white. Since me and my mom both have a history of anemia (red blood cell deficiency) we supposed that might be what she had, so I called Molly's regular pediatrician to see if we could get in as soon as possible to do a blood test for anemia. They told me the soonest they could make an appointment for her was on the following Monday, so I set it up for 1pm and carried on with my weekend as planned. We left Molly and Big Sis with Daddy's parents for the weekend (we explained she would have low energy and wouldn't want to walk because of the likely strain in her knee and probable anemia) and we headed to Denver for a Celtic Thunder concert.
Monday Nov 19th, the pediatrician's office called and asked if we could move the appointment back an hour, which was fine except for Molly's nap is usually around 2pm. I called my mom after to let her know I would update her after the appointment on what the pediatrician says about Molly, since she's the one that opened my eyes to how seriously pale Molly had gotten.
We went in and the pediatrician came in and asked for details why I thought Molly needed to be seen that day, and after I explained everything he poked around her belly and listened to her chest and squeezed her legs. He then looked at me and said I needed to take her down to Primary Children's immediately, because he suspected she has ALL, a type of leukemia. He said he would call down to the Emergency Room and let them know I was coming. He sent a nurse in to give me directions to PCMC and asked if I am ok to drive down there alone or if I wanted someone to go with me. I suspect he thought I was in shock or something, but I was holding everything together just fine because I still didn't quite understand what ALL was and I knew Molly really was just anemic and no one had taken any blood for tests yet so they weren't sure themselves. So I got in the car and ran through in my head everything I had with me to make sure I didn't need to go back home for anything before heading down to PCMC (Primary Children's Medical Center). After I got on the freeway I called Daddy and told him what was up and asked if he could take the rest of the day off work since I would be passing by his work on the way to PCMC at around 3pm anyways. Then I called my mom to tell her what the pediatrician thought Molly had and asked her to look it up online to learn more about it.
I picked up Daddy and we arrived at PCMC around 4pm and checked in at the ER. They called us back almost immediately (they really didn't seem busy that day) and an ER nurse put a needle into Molly's left hand and wrapped it up so she couldn't bend it or pick at it. I really should have been thinking better right before they put the needle in because Molly sucks her left thumb and I should have told them that so they would put the needle in her right hand. But it was in the left, and they drew some blood and sent to their lab to be analyzed. We waited in that ER room for 2 hours while the lab finished all their tests and while we were there we got a lot of visits from a lot of doctors, nurses, and a social worker. I couldn't keep any of their names straight or what part of the hospital they were from, but that's ok... there's only one that we have seen several times since the ER visit.
Quick lesson (you may know this already from watching Grey's Anatomy or other such shows):
- Intern: Someone who has completed medical school and is working for a year at a hospital to learn how things are done there under supervision
- Resident: Someone who has completed their internship at a hospital after medical school and works under supervision
- Fellow: Someone who has completed their residency and is training in a sub-specialty under supervision
- Attending: Someone who has completed their fellowship and is now able to perform medicine unsupervised. They may be supervising the Fellow and Resident.
An Attending doctor came in sometime around 2 hours after we arrived and drew a diagram on a napkin of a bone and what the marrow inside it does. For some reason the doctors and nurses there have a shortage of note paper because they were all drawing things on napkins for us... kind of odd in my opinion.
Quick lesson (bone marrow):
The bone marrow is where parts of blood is made, and specifically in our case the white blood cells, red blood cells, and platelets.
- White blood cells: these help fight infectious diseases. Normal: around 17
- Red blood cells: these carry oxygen to all parts of the body. Normal: around 5.3
- Platelets: these help blood clot if it needs to. Normal: around 400,000
- Lymphoblasts ("blasts"): immature white blood cells. Normal: anything under 20%
Between that and when they took Molly up to the ICS (Immuno Compromised Services) unit on the 4th floor, I cried and cried. My dad called to see if they could come visit us in the hospital, which they did, and Daddy took Big Sis to his parents house to stay for the night and to pick up some dinner for us.
To be continued...
I am very grateful for my mom who scared me into taking Molly to the pediatrician to get checked out, and for the pediatrician who recognized the signs of ALL and sent me down to PCMC. I am not a religious person, but I know that Daddy would thank his heavenly father for inspiring everyone involved so that we can all do what needs to be done to help Molly survive.
Molly is incredibly important to me, and it's something like this that makes you realize how fragile the human body is and how important it is to take care of yourself. I got a glimpse of how others might feel if I somehow ceased to be alive.
Please comment if you have anything to say or if you have any additional questions about the post above you would like answered.